First blog post

 

Thanks for visiting my blog, I guess it’s always hard starting off, a bit like an artist making that first brush stroke on the canvas, but here goes, I’m basically going to chat about my life and how my symptoms effect my day to day life, and have stopped me from doing things I would love to be able to do.  Just as if you were sat in my front room with me, I will try and put over how I feel, tell you of the things that have helped me, and things that have set me back, prevented me from achieve my goals.

Now I have mention in my (about) page that I was diagnosed with lymphoedema in the 90s and if you are not sure what lymphoedema is, it is what was known as elephantiasis, some still call it that. Now if you are about to eat your breakfast, lunch or dinner, then I apologise and you may want to continue reading later when you have finished, it’s not a pretty sight but it is me, still human with feeling, just a little misshapen, this is a photo of my legs at their worst two years ago, and my life was pretty low then.


As I said not a pretty sight, I won’t show you the backs as they had open wounds approximately 4 inches which did not want to heal. Without wanting to bore you with to much detail, I felt, I was and I am let down by our local Lymphoedema NHS’s clinic, and if it had not been for the great support that I have received from my own doctors surgery, along with the incredible support and care of the district nurses, then my health may be a whole lot worse today.

It was after reading in a magazine for lymphoedema patients that I saw an add for Farrow Wraps, a compression garment for people like myself, but my lymphoedema clinic said they were no good, my doctor on the other hand supported me and got them for me, and they have transformed my life. I can now walk without my legs banging together, my legs are more normal now and do not attract so much attention as they did before, I feel more human.


As you can see, there’s a bit of a difference, (yet the professionals in this field in our area, said they do not work, shame on you!) however after living years with extremely large misshapen legs there were and still are side effects, anxieties, phobia and depression, this has made living the life I would love to live very difficult, but I want to change all that and I want to take you on that journey with me, I will update as much as I can, and will tell you tales of when I was a chef, take you on our journeys in our amazing Eriba caravan, maybe play some songs I wrote, show you photos I have taken, and much more, and hopefully I’ll make the goals I want to reach, defeat my fears and who knows maybe inspire you to tackle yours.

Well I did it, that’s the end of my very first blog, thanks for reading, hopefully you’ll come back.